After being home for only 1 week, I got sick and took an ambulance to the hospital. I got better and went home but then had an allergic reaction to a shot and ended up back in the hospital again. I'm still here and have been very sick, going in and out of the ICU. I was paralyzed and sedated for a week to help me stabilize.
Since then I've been feeling pretty good, considering, and am back to using my home vent. I've gotten pneumonia and am not tolerating my feedings. I'll be going to a rehabilitation hospital for a few weeks to help get back on track. I've been having trouble sitting and grabbing things these days.
Despite all of this, I'm happy as ever and growing like a weed. I'm already in 24 month shirts and 3 pants and shorts!