I'm HOME and loving it!!!!!!!

I celebrated my first Birthday in the hospital then FINALLY got to go home with my family when I was about 13 months old. Things are really different at home and so much better! I get to be closer to my big brothers and Mom & Dad all the time now. I keep getting bigger and stronger, I weigh 20 pounds and am 23 inches tall. Can you believe I only weighed 1 pound, 1 ounce when I was born? I've been through a lot and know that I'm loved and special :)

Gearing up for home...

In one month, I'll celebrate my first birthday and the medical team is finally talking about sending me HOME! Mom, Dad, my big brothers, and my whole family are so excited! 

I'll be taking a ventilator home with me but my lungs are getting better and stronger everyday. The ventilator setting are low and I can breath on my own for 8 hours a day. 

I'm getting bigger everyday, I weigh 18.5 pounds, and I love to smile :)

Mom & Dad are hard at work getting my room ready at home, I can't wait!

Breathing easier

I’ve been having more troubles with my breathing and had to have surgery this week.  The doctors put in a special tube to help me get more air to my lungs and it seems to be working because my breathing machine settings are lower now.  I’m a fighter and keep overcoming hurdles.  I’ve even outgrown my premie clothes and tip the scales at 6 pounds 11 ounces. 

I wore a dress for the first time

Since I've been growing, I'm big enough for premie clothes.  My nurse and my Mom dressed me in this cute purple dress for a photo shoot on Friday. 

I've gotten pneumonia again and have been very sick for the last few days.  The settings on my ventilator are high and I'm getting a lot of medication right now.  Things are very unstable for me now, but I am strong and fighting with everything I have!

Because a lot of people have been working hard, my family gets to move back home next weekend.  

My family is asking for prayers and well wishes from everyone, please take a moment for us today.

 My first dress-up day

My first dress-up day

Meet Lillian. Destination Home Family 14

I was born 4 months too early weighing 1 pound, 1 ounce and my lungs didn't have a chance to fully develop.  I'm 2 months old now and have needed a ventilator to help me breath my whole life.  My doctors say that my lungs were damaged by pneumonia and that I'm very sick, but I am strong and I keep fighting everyday.  Mom, Dad, and my 3 big brothers are always there for me but our house had a fire and things have been very hard for them too.  Everyone was safe from the fire but everything in our home was lost.  Lucky for us, we still have love, and faith, and hope, and each other.  I'll have to stay in the NICU for awhile longer and my family will not be able to move back home for couple of months.  My family and I are asking for prayers.