I am 7 years old and the most amazing boy! I am keeping up with my peers physically and often surpass kids my age in reading and math. Despite a recent diagnosis of ADHD, I was selected to be evaluated for the gifted education program at school! I love being a big brother, playing outside, and hanging out with my family.
It's official, I have a clean bill of health :)! My trach was removed in May 2015 and the stoma was closed in April this year. Now, I can go swimming without covering it. I don't need braces for my legs/ankles any more and the physical therapist says I'm performing like my peers.
I won 2nd place in the pinewood car derby races. I started preschool and am excited to meet new friends there!
And, the most exciting thing in my life is my NEW baby sister, I LOVE being a big brother!
Mom says I'm growing into a normal ornery two-year-old boy. I'm still small for may age but that's OK because I'm strong and healthy now.
The first thing I want to do in the morning is go outside with my dog. I know lots of words in sign language and am learning to use my voice too. I can say: dog, bubble, hi, mama, daddy, and uh-oh. I also learned how to multitask at bath-time, I can brush my hair and teeth at the same time!
In a few weeks, I'm going back to the hospital for a procedure on my airway. If everything looks good, the doctors might be able to take out my tach and I'll be able to breath through my nose and mouth. In the meantime, let's go outside!!
Turning two must be the easiest thing you've had to do,
I just blinked my eyes, and it happened to you.
Seems like the days just go speeding right by,
Why, you'll probably turn three in the wink of an eye.
So let's take time to celebrate your birthday today,
And cherish this moment before it slips fast away.
Do you like my new glasses? Mom says I'm a fast learner. Now that I can see things better, I'm going to learn even more. I can sign 20 words and say uh-oh & mama. I'll be two in March and keep hitting my major miles stones! I weigh 25 lbs and am 30 inches tall. I had surgery last Friday but you can't even tell, I surprised my parents by making a super speedy recovery! The doctors think maybe they'll take out my trach this year!
I had another surgery a couple of weeks ago and stayed in the hospital for awhile. Since I'm big and strong now, I'm doing much better with recovery. I'm home with my family healing and getting lots of love. The doctor said I might be able to have my trach out soon!
Here I am after my second haircut, hanging out in my crib. I love hanging out at the park, too. I'm a happy boy!
I'm growing up! For my First Birthday, my parents asked our friends to make a donation to GiFT instead of getting me presents. They're the best!
My Mom said “It's really nice to know someone is out there thinking of the families like mine who are at a challenged point in life.”
December 8, 2012: The surgeons put a special tube in my neck to help me breathe. I need to have more procedures but I’m happy to be home helping with the Christmas tree! I’m almost 2 ft tall and weigh over 15 pounds!
October, 2012: I’m growing up and LOVE to eat, gained 12 pounds since I was born! My Mom’s glad that I’ve gotten so big and strong because I need to have a few more operations on my airway :( So far, I’ve had one and am back in the hospital. The doctors & nurses take good care of me here but I want to go home soon!
June 25, 2012: After almost 4 months in the hospital, I learned how to eat from a bottle and I’m finally home with my family! I still need a little oxygen but hopefully, not for long.
May 4, 2013: I had surgery on my eyes last week and went back on a breathing machine for awhile, I’m feeling better now but am still fighting an infection. The good news is that I’m up to 4 pounds now & I’m starting to have my feedings again.
May 4, 2012: Here I am inside my isolette at St. Louis Children’s Hospital, patiently waiting until the day I’m ready to go home with my family. When I was born, I had some heart troubles, breathing problems, and I only weighed 1lb, 8oz. I’m doing a lot better now & already weigh 3lb 11oz but Mom says I’ve got to grow up some more before I can leave. I’ll be concentrating on getting bigger!