We keep growing and learning! It's aweseome when your BFF is also your twin sister :)
We are off the bubble CPAP and that means we we're getting closer to going home to be with our family! We are learning how to take a bottle, growing bigger and stronger everyday.
It's official, I have a clean bill of health :)! My trach was removed in May 2015 and the stoma was closed in April this year. Now, I can go swimming without covering it. I don't need braces for my legs/ankles any more and the physical therapist says I'm performing like my peers.
I won 2nd place in the pinewood car derby races. I started preschool and am excited to meet new friends there!
And, the most exciting thing in my life is my NEW baby sister, I LOVE being a big brother!
These adorable triplets are 2 and a half years old this summer and they're doing great!
We are growing and doing well, our Mommies think we are so much fun! Sister just talks and talks but brother isn't taking just yet, it will happen in his own time. Our whole family wants to say thanks!
"No words or money could even describe how thankful we are for your organization! GiFT has been such a blessing for our family. We want to thank you from the bottom of our hearts for all GiFT has done for us. GiFT will always have a special place in our hearts!"
After being home for only 1 week, I got sick and took an ambulance to the hospital. I got better and went home but then had an allergic reaction to a shot and ended up back in the hospital again. I'm still here and have been very sick, going in and out of the ICU. I was paralyzed and sedated for a week to help me stabilize.
Since then I've been feeling pretty good, considering, and am back to using my home vent. I've gotten pneumonia and am not tolerating my feedings. I'll be going to a rehabilitation hospital for a few weeks to help get back on track. I've been having trouble sitting and grabbing things these days.
Despite all of this, I'm happy as ever and growing like a weed. I'm already in 24 month shirts and 3 pants and shorts!
I weigh 6 pounds, 6 ounces now. I'm learning how to breast feed and eat from a bottle but it's exhausting. Sometimes I get my milk through a special tube. The nurses say I'm doing great and won't need the tube much longer. I'm still using a little oxygen and pretty soon, I won't need it at all. I love long talks with Dad, snuggle time with Mom, and my burrito wrapper blankets. I think I'm going home soon and can NOT wait!
I celebrated my first Birthday in the hospital then FINALLY got to go home with my family when I was about 13 months old. Things are really different at home and so much better! I get to be closer to my big brothers and Mom & Dad all the time now. I keep getting bigger and stronger, I weigh 20 pounds and am 23 inches tall. Can you believe I only weighed 1 pound, 1 ounce when I was born? I've been through a lot and know that I'm loved and special :)
We are the 3 sweetest girls around town and have been growing like crazy since we've been home from the NICU! We're all trying to stay healthy throughout the cold and flu season. Here we are just before Christmas 2014.
In one month, I'll celebrate my first birthday and the medical team is finally talking about sending me HOME! Mom, Dad, my big brothers, and my whole family are so excited!
I'll be taking a ventilator home with me but my lungs are getting better and stronger everyday. The ventilator setting are low and I can breath on my own for 8 hours a day.
I'm getting bigger everyday, I weigh 18.5 pounds, and I love to smile :)
Mom & Dad are hard at work getting my room ready at home, I can't wait!
I'm now 3 years old and have started preschool this year. I still have my G-Tube but am working on my nutrition so one day it can be removed. My mom says she's so proud of me. I've come a mighty long way!! I enjoy singing my ABC's & other children songs. I know all my shapes and colors and even can count backwards!! My Mom said your organization has touched so many lives including ours. We will be forever grateful!! Love you guys.
I was moved to a room with a window and am loving the sunshine :) The surgeons put a special tube in my stomach back in August and it's helping me grow big and strong, I weigh over 15 pounds now! My ventilator settings and oxygen are coming down little by little and I haven't needed antibiotics in awhile. As you can see, I've been smiling a lot and love my primary nurses.
Here we are on our first day of school. We absolutely LOVE going to school because we're very smart :) We can sing ABC's, count from 1 to 10, and we know all the shapes and colors. Our Mom says we have definitely come a long way!
Although small for their age at 16 months, these two are growing up! They've come a long way from the NICU and have both overcome hurdles. They continue to work with specialist in occupational, developmental, and physical therapy three times a week.
Baby sister weighs 17 lbs and is 26 inches long. She is walking and walks everywhere! She loves to look at books and the pictures, we have a reader! She also loves to get into drawers in the kitchen.
Baby brother is such an affectionate little boy and loves to give kisses. He weighs 20 lbs is also 26 inches long. He is crawling, but not quite walking on his own, he walks along the furniture. He loves to play basketball with his mommies. He is also a big flirt too!
At 18 months, Mom says we are awesome! Baby sister still deals with some belly issues so she’s a bit smaller but we are ALL growing great, walking, running, talking, happy, and healthy :)
I've been very sick this week, I have pneumonia again and a virus. The doctors and nurses are doing all they can to keep me comfortable and my ventilator is helping me breathe. I'm having my heart checked out today. Because I'm not feeling well, my Mom, Dad, and brothers have been very sad. Mom is asking for prayers and well wishes for me and the whole family.
I was the second one born but the first to go home, that's me with the bow on my hat :). I weigh 7 pounds and LOVE being home with Mom and Dad. My sisters have to stay in the hospital a little longer and it's hard for our family to be apart. My older sister still needs oxygen and my younger sister is having some trouble with her blood pressure. I miss them so much and can't wait until the day we are all together again.
Mom says I'm growing into a normal ornery two-year-old boy. I'm still small for may age but that's OK because I'm strong and healthy now.
The first thing I want to do in the morning is go outside with my dog. I know lots of words in sign language and am learning to use my voice too. I can say: dog, bubble, hi, mama, daddy, and uh-oh. I also learned how to multitask at bath-time, I can brush my hair and teeth at the same time!
In a few weeks, I'm going back to the hospital for a procedure on my airway. If everything looks good, the doctors might be able to take out my tach and I'll be able to breath through my nose and mouth. In the meantime, let's go outside!!
No more breathing tubes and no more incubators for us. We are all needing a little oxygen but the heavy duty breathing machines are gone! We are all three learning how to eat with a bottle and making progress. The biggest sister weighs 5 pounds, 2 ounces and she will get to go home from the NICU first. Then, the 2nd biggest sister weighing 4 pounds, 8 oz will be heading home too. The smallest baby girl, weighing 4 pounds, will have to wean her oxygen more before she's ready for home. Mom & Dad are very busy these days getting everything ready for the three of us.
I'm 5 months old and weigh 9 and a half pounds! The medical team is turning down my ventilator settings and I’m doing good. The doctors have been talking to Mom about bringing me home and we are all soo excited. My Mom & Dad are learning how to take care of my special breathing tube, there's lots to learn before I'm ready to leave the hospital. My family has moved back into our house after the fire so they are starting to get things ready for me there. Yay!