I am almost 3 months old and have spent my entire life in the NICU. I've had a lot of problems with digestion and have had multiple surgeries on my bowels, even needing an ostomy for a while. It took the medical team a long time to figure out why my belly wouldn't digest the way it should and my family is relieved to finally have a treatment plan that will help me get home. They found out I have Cystic Fibrosis. I can't wait until the day when my whole family can be together under one roof!
top of page
bottom of page