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DH1 Full Story

I'm turning 10 this year

February 20th, 2021: I'm turning 10 this year, just like GiFT! I was 8 months old when I came home from the hospital for the first time. After all those months with breathing problems, I decided to take out my own breathing tube at home. It scared Mom but I didn't need it anymore. At 4 years old, I became a big brother and no longer needed a feeding tube. Now, I'm a 4th grader and I love the outdoors! I'm learning to play chess and I love to travel. I still have some breathing issues but it's not holding me back from being athletic, I play basketball, soccer, and track.

Growing Up and Making Strides!

No more trach!

Hi everyone, I'm such a big boy now! I finally got my trach removed and am doing awesome at home with my family. I have learned so many things over the last year and am very excited about the special appointment coming very soon to have the doctors remove my g-tube.

Getting Bigger and Healthier

October 10, 2011: I weigh over 13 pounds now and am getting healthier everyday.  I moved to a special hospital for children until the cold & flu season is over.  Hopefully by then I will not need my ventilator anymore & can go home to my family!

Recovering From Surgery

September 13, 2011: I’ve recovered from my most recent surgery & am breathing by myself for almost 4 hours at a time!

Still Growing

August 26, 2011: I’ve been in the hospital for 3 months now and have more obstacles to overcome before I’m ready to go home. I’m still growing and tip the scales at 10 lbs &10 oz now.

Meet Destination Home Family #1

August 8, 2011: Hi!  The nurses & doctors have been taking good care of me at St. Louis Children’s Hospital but I’m looking forward to the day I can go home!  It will be the first time in my life that I’ve been outside.  I’ve got some breathing problems so I’ll be bringing my oxygen with me.  I’ve got a special tube in my belly to make sure I get enough to eat...I almost weigh 9 pounds so it must be working!  The doctors say I get to go home when my breathing is better so I’m working hard on getting strong!



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