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  • Oct 31, 2019
  • 1 min read


I was born this past May at 24 weeks gestation weighing only 1lb 4oz. I had a very rough start and it took time to diagnose my Scimitar Syndrome. It is extremely rare and doctors could not find a documented case in a preemie or extremely low birth weight baby. I needed open heart surgery but was not big enough or healthy enough. The doctors wanted me to weigh about 5lbs before they would operate.


In September, I reached 5lbs and was ready for my big surgery. The operation went well but my lungs are not fully developed and my left lung is small. In October I had another surgery for a Tracheostomy, a Gastrostomy Button (G-Button), and hernia repair. I've also had multiple eye surgeries and procedures for Retinopathy of Prematurity. The doctors think the vision in my right eye will be saved.


I'm doing better every day but need a ventilator to help me breathe. My family feels extremely blessed that I am getting stronger and healthier. I am happy to have many wonderful people who care for me!

 
 
 
  • Oct 31, 2019
  • 1 min read

I was born 15 weeks early and only weighed 1 pound, 11 ounces. I've grown a lot since then and weigh 3 pounds 10 ounces now. I no longer need a machine to help me breath but I still need oxygen. I'm working on my breathing and eating so I can go home to be with my family.



 
 
 
  • Oct 31, 2019
  • 1 min read

I weigh 6 pounds, 6 ounces now. I'm learning how to breast feed and eat from a bottle but it's exhausting. Sometimes I get my milk through a special tube. The nurses say I'm doing great and won't need the tube much longer. I'm still using a little oxygen and pretty soon, I won't need it at all.  I love long talks with Dad, snuggle time with Mom, and my burrito wrapper blankets. I think I'm going home soon and can NOT wait!

I was born on New Year's Day, 11 weeks early and weighed 2 pounds, 12 ounces. The first few weeks of my life have been scary for me and my family. I had bleeding in my brain but the doctors say that it's getting better and so am I :)  I've been growing, I'm up to 3 and a half pounds. My big brothers, sister, and Mom & Dad can't wait for me to get home. I have to get bigger and stronger first so I'll stay in the NICU a little while longer.


 
 
 
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