top of page

Hi, December is my birthday month and I'm turning two years old! I'm still in the hospital but doing well. I'm working on changes with my breathing tube.

After being home for only 1 week, I got sick and took an ambulance to the hospital. I got better and went home but then had an allergic reaction to a shot and ended up back in the hospital again. I'm still here and have been very sick, going in and out of the ICU. I was paralyzed and sedated for a week to help me stabilize. 

Since then I've been feeling pretty good, considering, and am back to using my home vent. I've gotten pneumonia and am not tolerating my feedings. I'll be going to a rehabilitation hospital for a few weeks to help get back on track. I've been having trouble sitting and grabbing things these days.

Despite all of this, I'm happy as ever and growing like a weed. I'm already in 24 month shirts and 3 pants and shorts!

I celebrated my first Birthday in the hospital then FINALLY got to go home with my family when I was about 13 months old. Things are really different at home and so much better! I get to be closer to my big brothers and Mom & Dad all the time now. I keep getting bigger and stronger, I weigh 20 pounds and am 23 inches tall. Can you believe I only weighed 1 pound, 1 ounce when I was born? I've been through a lot and know that I'm loved and special :)

In one month, I'll celebrate my first birthday and the medical team is finally talking about sending me HOME! Mom, Dad, my big brothers, and my whole family are so excited! 

I'll be taking a ventilator home with me but my lungs are getting better and stronger everyday. The ventilator setting are low and I can breath on my own for 8 hours a day. 

I'm getting bigger everyday, I weigh 18.5 pounds, and I love to smile :)

Mom & Dad are hard at work getting my room ready at home, I can't wait!

I was moved to a room with a window and am loving the sunshine :) The surgeons put a special tube in my stomach back in August and it's helping me grow big and strong, I weigh over 15 pounds now! My ventilator settings and oxygen are coming down little by little and I haven't needed antibiotics in awhile.  As you can see, I've been smiling a lot and love my primary nurses.

I've been very sick this week, I have pneumonia again and a virus.  The doctors and nurses are doing all they can to keep me comfortable and my ventilator is helping me breathe.  I'm having my heart checked out today.  Because I'm not feeling well, my Mom, Dad, and brothers have been very sad.  Mom is asking for prayers and well wishes for me and the whole family.

I'm 5 months old and weigh 9 and a half pounds!  The medical team is turning  down my ventilator settings and I’m doing good.  The doctors have been talking to Mom about bringing me home and we are all soo excited.  My Mom & Dad are learning how to take care of my special breathing tube, there's lots to learn before I'm ready to leave the hospital.  My family has moved back into our house after the fire so they are starting to get things ready for me there.  Yay!  

I’ve been having more troubles with my breathing and had to have surgery this week.  The doctors put in a special tube to help me get more air to my lungs and it seems to be working because my breathing machine settings are lower now.  I’m a fighter and keep overcoming hurdles.  I’ve even outgrown my premie clothes and tip the scales at 6 pounds 11 ounces. 

Since I've been growing, I'm big enough for premie clothes.  My nurse and my Mom dressed me in this cute purple dress for a photo shoot on Friday. 

I've gotten pneumonia again and have been very sick for the last few days.  The settings on my ventilator are high and I'm getting a lot of medication right now.  Things are very unstable for me now, but I am strong and fighting with everything I have!

Because a lot of people have been working hard, my family gets to move back home next weekend.  

My family is asking for prayers and well wishes from everyone, please take a moment for us today.

I was born 4 months too early weighing 1 pound, 1 ounce and my lungs didn't have a chance to fully develop.  I'm 2 months old now and have needed a ventilator to help me breath my whole life.  My doctors say that my lungs were damaged by pneumonia and that I'm very sick, but I am strong and I keep fighting everyday.  Mom, Dad, and my 3 big brothers are always there for me but our house had a fire and things have been very hard for them too.  Everyone was safe from the fire but everything in our home was lost.  Lucky for us, we still have love, and faith, and hope, and each other.  I'll have to stay in the NICU for awhile longer and my family will not be able to move back home for couple of months.  My family and I are asking for prayers.

9 views0 comments

I'm 9 1/2 months old now and getting stronger and bigger everyday!  I still need the ventilator and trach to help with my breathing but I love living at home with my family.  We think about baby sister everyday, I miss her so much.

A whole lot has changed in the last few months.  I came home from the hospital back in November but my sister wasn't able to, she was too sick.  I'm growing and getting stronger everyday but my heart is broken because my sister passed away.  She was the best friend I ever had and I miss her so much.  My family misses her too, we remember her everyday.  

We don't need machines to help us breath anymore so now we can hang out and hold hands sometimes.  We're looking forward to the day we can go home to be with our family.

"My family and I thank you and your team for being there in a time of need and sending a great GIFT team with hearts filled with lots of LOVE!" 

Here we are without our breathing tubes!  Baby sister had to have her's back in but she is still growing, almost up to 4 pounds.  Baby brother almost weighs 5 pounds, he's going to learn how to eat from a bottle soon.  We hope we can go home next month!

Since we were born, baby sister has gained 2 pounds, 8 ounces.  She is very smiley and looking cute in her green shirt here!  Baby brother has gained 3 pounds but had to have his breathing tube back in.  We are doing well, the doctors are going to try to take these breathing tubes out again.

Baby brother is doing so well that he got to have his breathing tube out.  We are both growing but have our feedings through a special tube.

Our parents were not expecting us until August, but we decided to come into the world in May!  We're both on machines that help us breath.  Mommy's milk comes to us through a special tube that goes into our bellies.  Right now, only Mom, nurses, and doctors are allowed to touch us because we like things to be very quiet in the isolette.  We've got a lot of growing to do before we're ready to go home.

Baby Brother, one & 1/2 pounds at birth
Baby Sister, one pound at birth

7 views0 comments

We are growing and doing well, our Mommies think we are so much fun! Sister just talks and talks but brother isn't taking just yet, it will happen in his own time. Our whole family wants to say thanks!

"No words or money could even describe how thankful we are for your organization! GiFT has been such a blessing for our family. We want to thank you from the bottom of our hearts for all GiFT has done for us. GiFT will always have a special place in our hearts!"

Although small for their age at 16 months, these two are growing up!  They've come a long way from the NICU and have both overcome hurdles.  They continue to work with specialist in occupational, developmental, and physical therapy three times a week.

Baby sister weighs 17 lbs and is 26 inches long.  She is walking and walks everywhere! She loves to look at books and the pictures, we have a reader!  She also loves to get into drawers in the kitchen. 

Baby brother is such an affectionate little boy and loves to give kisses.  He weighs 20 lbs is also 26 inches long. He is crawling, but not quite walking on his own, he walks along the furniture. He loves to play basketball with his mommies. He is also a big flirt too! 

My sister and I are both home and doing well.  We both weigh about 8 lbs 3 oz's.  My sister caught up to my size because I had trouble eating at first, but now I take medicine for reflux and eat formula instead of mommy's milk. ~

My sister got to go home first and I stayed in the hospital for awhile to work on my breathing and eating.  I'm still having some trouble with eating but it's getting better everyday.  I'm just happy to be home with my sister and to have my whole family all together.

We are brother and sister and came 10 weeks early.  We went straight to the NICU and both needed machines to help us breath when we were born.   Our lungs are working a little better every day.  We've both had some ups & downs but the doctors say that's normal for babies our age.

Baby brother 3 lbs 2 oz

Baby sister 2 lbs 6 oz

5 views0 comments
bottom of page